Ethical Frameworks in Rare Disease Drug Development

Engage with top bioethicists and research leaders at Paris 2025 discussing the complex ethical landscape of rare disease R&D. Sessions address informed consent, compassionate use, post-trial access, and equitable data use. Understand how to design ethical clinical trials and regulatory pathways while balancing innovation with patient protection. Learn about frameworks for transparency, justice, and respect in working with vulnerable populations. Shape your approach to responsible innovation and ethical integrity in the orphan drug development process.

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