Rare Disease Clinical Trials: Recruitment and Retention Strategies
Recruiting and retaining participants in clinical trials for rare diseases can be challenging due to the limited number of eligible patients and the burden of participation. Patient advocacy groups play a critical role in helping researchers identify and recruit eligible patients. Social media and online platforms can also be effective tools for reaching patients and raising awareness of clinical trials. Incentives, such as travel reimbursements and access to free treatment, can also help retain participants in trials. Providing clear and regular communication with participants and their families about the trial's progress and results is essential to maintaining engagement and trust. Collaboration between researchers, healthcare providers, patient advocacy groups, and patients is necessary to overcome recruitment and retention challenges and advance rare disease research.
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Rare Disease Clinical Trials: Recruitment and Retention Strategies Conference Speakers
Recommended Sessions
- Addressing Health Disparities in Rare Diseases
- Advancements in the Diagnosis of Rare Diseases
- Biomarkers for Rare Disease Diagnosis and Treatment
- Clinical Trial Design for Orphan Drugs: Unique Challenges and Solutions
- Emerging Technologies in Rare Disease Research
- Genetic Testing and Counseling for Rare Diseases
- Multi-Stakeholder Collaborations in Rare Disease Research and Development
- New Therapeutic Approaches for Rare Cancers
- Novel Approaches to Drug Discovery for Rare Diseases
- Orphan Drug Pricing and Reimbursement Strategies
- Patient-Centered Research in Rare Diseases
- Patient-Focused Outcomes in Rare Disease Research
- Pediatric Rare Diseases: Challenges in Diagnosis and Treatment
- Preclinical Studies for Orphan Drug Development
- Rare Disease Clinical Trials: Recruitment and Retention Strategies
- Rare Diseases and the Health Care System: Access and Coverage Challenges
- Regulatory Considerations for Developing Orphan Drugs
- The Role of Artificial Intelligence in Rare Disease Research
- The Role of Patient Advocacy Groups in Rare Disease Research
- Translational Medicine for Rare Diseases: From Bench to Bedside
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